How to Face a Process of Serious Disease with Children

 

“Now is no time to think of what you do not have.
Think of what you can do with that there is”

Ernest Hemingway

In the field of the legal protection of the privacy of the patient and the ability to have the details to be transmitted to other people (minors in this case) associated with the ill person; the first issue to take into account focuses on assessing whether the person affected by a poor health prognosis is capable, conscientious and competent; in which case we will have to know his/her opinion about sharing such information, which legally belongs to him/her.

In the case of showing a positive attitude towards sharing this information, it is convenient to clarify how, when, where, who … will inform about his/her status. From my point of view is very important that the ill person owns his/her information and decides to whom it is transmitted. In our culture, we usually understand that the family “should know”, and the information flows without telling the affected party and this is not correct. It is customary, to communicate the fatal diagnosis or prognosis to the family, before and even in place of the person concerned. The criterion is that they, who know him/her well, and even live with him/her, will know how and when to convey “the news”. Content is available only for registered users. Please login or register

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